Charlotte had her lung perfusion on Monday. The lung perfusion is an imaging test that uses a contrast dye to track the how her blood is pumping from her heart through her lungs. It measures, as I understand it, both velocity and concentration. Drs. Gossett and Young will use the readings from this test to determine what to look for with the cardiac catheterization and, after that, as part of a totality of evidence from which to decide next steps in general.
The picture looks like uncharted stars on a night sky. Dr. Jarrod Green, the radiology fellow, explained that they would create mathematical measurements to understand the volume and velocity of blood pumping to her arteries. Jamie, the nuclear medicine technologist, explained that once the photos were all taken, she would center and arrange them so that each showed the lungs in the identical place in the image, which would also match up to Charlotte’s other lung perfusion tests. The idea is not only to get a picture of current conditions, but also to tell a story and see how today’s picture fits in.
We scheduled the test for first thing in the morning with the intention that Charlotte would go to school afterward. For a week leading up to the test, Charlotte was quite nervous. She swung between asking a lot of questions and asking me not to mention it. But, yesterday morning, she got up, ate breakfast, and went chatting to the car like it was any other day. I was quite struck that she had few “game day” jitters, to be honest.
We arrived at Lurie Children’s at about 8:10 for our 8:30 appointment. We were taken back to the imaging lab within minutes and the whole process started early. First, Charlotte had to be weighed so the nuclear medicine lab could concoct the dye.
Emily, the wonderful child life specialist, and Jackie, the nuclear imaging technologist, set about explaining the test to Charlotte–the numbing of her arm, the IV and medicine, and the lying still for 45 minutes while sandwiched between two enormous cameras. Charlotte only wanted to know when they could get on with so she could start her movie (Harry Potter and the Sorcerer’s Stone).
Charlotte barely noticed the IV being inserted. She was too busy playing left-handed Brave Temple Run on Emily’s iPad. Once the worst part–the IV–was over, Charlotte was eager to get to the test.
We haven’t heard the results yet. We’ll hear more about the findings when we go for the cardiac catheter next week.
And if there isn’t enough going on, we move to our new house tomorrow!
Charlotte is a serious trooper.