Charlotte's Journey Home

Just a Regular Kid, Sort Of


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Heart Month 2016: How Aware Are You?

While the “Charlotte’s Journey” part of this blog is on a sort of hiatus for the time being, I thought I’d use Heart Month to continue raising awareness of CHD and of the amazing Heart Center team at Ann & Robert H. Lurie Children’s Hospital of Chicago.

This video tells the heart-stopping (literally) and heartwarming story of Kaysen, a brave baby who survived a heart transplant when she was only a few weeks old. Watch it, and try not to cry. I dare you.

Years ago, my friend Francie Paul asked the cardiac-thoracic surgeons at Lurie Children’s what they need most. The answer? More research dollars. The Children’s Heart Foundation notes that for every government dollar spent on cancer research (very important research, and I certainly don’t begrudge them the money), less than a fraction of a penny is spent researching congential heart defects, their origins, and their treatment. Less than a fraction of a penny  for the leading cause of birth defect-related infant illness and death.  Let that sink in a bit. And then if you feel like it, visit Saving tiny Hearts Society to learn about how Francie and her husband Brian decided to combat that imbalance.

I’d love to hear your story about CHD. Please share it in the comments.

mended heart