Charlotte's Journey Home

Just a Regular Kid, Sort Of

Feeding Clinic Update

4 Comments

This entry really should be titled “The Best Day Ever.” Why you ask?

Well, it has nothing to do with the 2 1/2 hour drive to Milwaukee or the nearly 3 1/2 hours it took us to get home.

Here are the basic stats of our visit.
Weight: 33.75 lbs (15.3 k)
Height: 40.5 inches (102.2 cms)
Yes, she is off the charts for height. In fact, she hits the charts at average for a child of 4 years and 3 months.

But, these stats are not the reason this was the best day ever. This is

“Bye bye, tummy tube.”

Yes, in that little specimen cup, Charlotte is holding her MICKey button, the last one she had in her tummy. Right now she sports a piece of gauze over the stoma. The stoma (or hole) should close up within 2 weeks.

We’ve also stopped the Pepcid as Charlotte’s reflux seems to be resolved. Further, we’ll be dropping one can of Pediasure a day, substituting it with whole milk, with the goal of getting her to whole milk with no additives by the time she starts preschool in September.

We’ll follow up with her surgeon in Chicago if the hole doesn’t close itself. After that we’ll go to Wisconsin in September to consult with Charlotte’s dietitian, Sara. (Every toddler should have their own dietitian!). In December, we’ll see the whole team.

As you might imagine (or not if you’re my brother!), I really have no words for the emotions I’m feeling right now. The champagne is in the fridge. It’s a good bottle, Veuve Cliquot, that Philippe’s EVP gave him at holiday time. We were saving it for a special occasion and we can’t think of anything more special than this.

The best day ever. Ever. Ever. Or, at least in the history of feeding Charlotte.

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Author: Culture Bean

I am a mother, a pre-published children's author, and a published academic. I am also a "mommy blogger," though I hate the term. My passions are reading and writing. As a professor, I strive to help my students think critically about the media and culture with which they engage. I've started this blog because it's time I put my money where my mouth is!

4 thoughts on “Feeding Clinic Update

  1. That’s awesome news! Congratulations! :)-Vanessa.

  2. Congratulations! Those are great news! I can’t wait to hear the news when the doctors tell me that my son’s reflux is resolved. I’m happy for you πŸ™‚

  3. That is WONDERFUL news and trult inspriational to us, as we have a 17 month old little girl who cannot eat anything other than tiny amounts of puree or milk! Please email me at marcusandmarina@hotmail.com as we’d love to hear your advice or comments. I cry every day from despair and hoplessness because I can’t believe our little girl will ever be able to eat proper ‘lumps’ of food!! Charlotte has given me true hope that one day, Milly may chew and swallow food without gagging or vomiting!Very best wishes to you from Marina (Milly’s mummy)

  4. WTG Charlotte!!!! I’m so happy you got a visit from the mickey fairy πŸ˜‰ She is doing sooo awesome!!!—Milly’s Mummy—Feel free to visit http://www.parent-2-parent.com/forum it’s a great support site for tube feeders and others with special needs.

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