Charlotte and I made the lovely drive to Milwaukee yesterday to visit with the Feeding Team at Children’s Hospital of Wisconsin and see what they thought of Charlotte’s progress during our trial of not using the g-tube.
Here’s what I told them: Since January 4, Charlotte has had a cold (at least one), an ear infection, a-typical pneumonia (not confirmed by chest x-ray), a stomach flu, and roseola. She has gained (drum roll please) exactly the amount of weight they wanted her to gain. So, we’ve proven that she can get sick, lose appetite and weight, and get right back on track.
Official weight: 32 lbs.
Next steps: The tube will not out until we’ve seen this progress continue for 3 to 6 months. In the meantime, we will stop taking Charlotte’s special food to daycare; so twice a week she will have typical toddler food with typical toddlers. The expectation is that she will either (a) eat it all because she’s hungry, improving her chewing, attention span, and overall oral skills or (b) chew, horde, not eat a lot and then chow down at home, making up the calories. Either way it’s a win for Charlotte and for me. For me because I don’t have to rush around like crazy to get her of the door on Mondays and Thursdays.