Charlotte's Journey Home

Just a Regular Kid, Sort Of


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Cardiology Update

Cardiology update: Charlotte saw her cardiologist, Dr. Young, on Friday for a pre-operation check-up. Luckily, we did not have to do an EKG or echiocardiogram. Charlotte was happy enough when coloring, but when the RNs wanted to weigh her (25.5 lbs) or measure her (2’10”) she screamed and screamed.

Dr. Young had us put an echocardiogram holster on Charlotte for 24 hours. This is probably the only medical thing I’ve neglected to photograph. In any case, Charlotte had 5 wires stuck to her chest and plugged in to a tiny, lightweight machine that she wore in a little bag, kind of like an evening bag, from her shoulder. After it was put on, she really didn’t know it was there, even during her nap and overnight. She did scream like crazy when I pulled the leads off yesterday.

We won’t know the results for about 10 days. The basic idea is that the reading will let Dr. Young and the surgeons know if there are any heart rhythm issues that need addressing during her surgery. This lets the surgeons know what, if any, wires to leave in for the post-op period. I’m betting on there being no arrythmia, but what do I know?

Surgery update: Charlotte’s surgery has been moved to 3/20 to accomodate Dr. Mavroudis’s schedule. Pre-op testing is 3/19.


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So Many Words

For the Charlotte’s Feeding Team, I’ve spent several hours (so far) this week working on questionnaires about her development. I had to circle all the words she knows. Here’s what I came up with:
apple
bath
banana
come
cake
down
cheese
eat
cookie
help
cracker
kiss
egg
peekaboo (boo)
hot
tea
sleep
water
up
ball
brush
balloon
home
book
clean
crayon
happy
bear
nice
moon
hat
star
sweater
bunny
byebye
chicken
excuse me
duck
hi, hello
fish
meow
puppy
nose
arm
out
belly button
thank you
chin
yes
ear
baby
eye
daddy
hand
mommy
knee
Elmo
nose
Dora
teeth
applesauce
noodle
o’s (sphagettio’s)
brush
hole
hippo
Okay, not all of the words sound like the ones that are logged here. But, Philippe and I (and Jenna, Karley, Eve and Laura) know what she means! (I’m sure I’m missing some words, so if you’ve heard her say something else, please add a comment!)
And…she has started saying “thank you” spontaneously, at the appropriate moments.


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25 pounds!

Charlotte reached 25.1 pounds as of her weigh in for her Synagis shot last week. She is officially almost 5x her birthweight. And, yes, her pants still fall down because she is skinny. She’s also grown about 1.5 inches since early November (seriously, I’m not making this up). I guess that explains why she’s skinny–all that “extra” weight has to fill out a lot more height.

She’s currently obsessed with:
–Mr. Potatohead (Tato) and makes sure to kiss him good night every night
–Lacing beads (beads pease), though she likes to unlace them after having me lace them

Pat the Bunny. Yeah, I know she’s a bit past the age kids usually like this one. But she wasn’t interested until last month. And she now has 2 three word phrases courtesy of this classic, “Pat the bunny” (duh, you saw that coming, right) and “sshhh, bunny (or mommy or daddy or Elmo) is sleeping”
–Elmo!!!!!! Another 3 word phrase “I atch Elmo.” It can mean “I watched Elmo” or “I want to watch Elmo.” If the latter it is insistent, urgent and repetitive
–The salad spinner. (Thanks to the Van Laer family for a wedding gift that even entertains the kinder!)

–Kisses and hugs

Zoe and Her Zebra by Clare Beaton
–Her Princess Crown (see above). If I’d let her, she’d wear it to bed!
Bembo (Gymbo the clown from Gymboree). What she really likes is getting her hand stamped at the end of class and having Gymbo come home with her
News from the reflux front coming soon.
(Princess Charlotte’s wardrobe is provided by Her Fairy Godmother.)